Specific Medical or Health Conditions

A
ACT UP New York (AIDS)

A diverse, non-partisan group of individuals united in anger and committed to direct action to end the AIDS crisis.
AIDS Action

The national voice on AIDS committed to advocating for people affected by HIV/AIDS "Until It's Over"
Allergy and Asthma Network

A national nonprofit network of families whose desire is to overcome, not cope with, allergies and asthma.
Alliance for Lung Cancer Advocacy, Support and Education

A national not-for-profit organization dedicated solely to helping people with lung cancer, and those who are at risk for the disease, improve the quality of their lives through advocacy, support, and education.
ALS (amyotrophic lateral sclerosis) Survival Guide

Information, resources, advocacy for people with ALS and people who care for and about them; web site created by Dan Eshleman, a person with ALS.
ALS Association (amyotrophic lateral sclerosis)

To ensure that government funding of meritorious research is pursued without hindrance, to help establish a sound policy for the eradication of ALS and to improve the quality of life for people with ALS.
Alzheimer's Association

The largest national voluntary health organization supporting Alzheimer research and care.
American Association of Kidney Patients

Exists to serve the needs, interests and welfare of all kidney patients and their families.
American Autoimmune Related Diseases Association

Dedicated to the eradication of autoimmune diseases and the alleviation of suffering.
American Brain Tumor Association

Exists to eliminate brain tumors through research and to meet the needs of patients and families.
American Chronic Pain Association

A non-profit, tax exempt organization with more than 800 chapters in the United States, Canada, Australia, New Zealand, Mexico, England, Ireland, Scotland and Russia.
American Council of the Blind

The nation's leading membership organization of blind and visually impaired people.
American Diabetes Association

The nation's leading nonprofit health organization providing diabetes research, information and advocacy.
American Heart Association
American Heart Association

A national voluntary health agency whose mission is to reduce disability and death from cardiovascular diseases and stroke.
American Liver Foundation (ALF)

A national, nonprofit organization dedicated to the prevention, treatment, and cure of hepatitis and other liver diseases.
American Lung Association

The oldest voluntary health organization in the United States.
American Pain Society

To advance pain-related research, education, treatment and professional practice.
American Porphyria Foundation

Enhancing public awareness about the disease.
American Social Health Association (STDs)

America's authority for sexually transmitted disease information.
Anxiety Disorders Association of America

The only national, non-profit membership organization dedicated to informing the public, healthcare professionals and legislators that anxiety disorders are real, serious and treatable.
ARC of the United States (mental retardation)

The national organization of and for people with mental retardation and related developmental disabilities and their families.
Arthritis Foundation

The only national not-for-profit organization that supports the more than 100 types of arthritis and related conditions with advocacy, programs, services and research.
Association of Cancer Online Resources

The free online lifeline for everyone affected by cancer and related disorders. ACOR is a unique collection of online communities designed to provide timely and accurate information in a supportive environment.
Ataxia-Telangiectasia (A-T) Children's Project

To encourage and support excellent laboratory research which will accelerate the discovery of a cure or possible therapies for Ataxia Telangiectasia.
Autism Network International

An autistic-run self-help and advocacy organization for autistic people.
Aventis Pharmaceuticals, Inc. - Diabetes Watch

B
Brain Aneurysm Foundation

Meeting the need for comprehensive information and support for brain aneurysm patients, their families, and the medical community.
Breast Cancer Information Service (BCIS)

Provides useful information to people seeking information about diagnosis, treatment, prevention, support, and insurance issues concerning breast cancer.
Breast Cancer Net

Links to breast cancer-related news and articles.
Breast Cancer Options

Breast Cancer Options is a breast cancer support, information and health advocacy group serving the Hudson Valley. Our Companion/Advocates program, funded by the New York State Department of Health, supplies a trained breast cancer advocate to go on medical visits with newly diagnosed patients. See web site for other services.

C
Canadian Diabetes Association

The largest non-governmental supporter of diabetes research, education and advocacy.
Canadian Liver Foundation

Committed to combating every form of liver disease through research, education, and patient support programs.
Cancer Information Service

The National Cancer Institute's link to the public, interpreting and explaining research findings in a clear and understandable manner.
Children and Adults with Attention Deficit Disorders

Providing education, advocacy and support for individuals with AD/HD.
Children's Heart Society

To work toward the day when no child will die from heart disease.
Children's Liver Alliance

Empowering the hearts and minds of children with liver disease.
Children with Diabetes

The on-line community for kids, families and adults with diabetes.
Chronic Fatigue and Immune Dysfunction Syndrome

Find detailed information about CFIDS, its symptoms, diagnosis, treatment, important research findings, and how it affects the lives of those who live with it everyday.
Chronic Pain Advocacy League

The Chronic Pain Advocacy League is a non-profit grassroots organization dedicated to improving the lives of individuals suffering from this disease.
Coalition of Voluntary Mental Health Agencies, Inc.

The umbrella advocacy organization of New York City's mental health community.
Cystic Fibrosis Research, Inc.

To fund cystic fibrosis research and to offer educational and support programs in a safe and healthy environment.

D
Depression and Related Affective Disorders Association

A community organization; we serve individuals affected by a depressive illness, family members, health care professionals and the general public.
Dual Diagnosis Website (mental illness and substance abuse)

Refers to co-occurring Mental Illness, Drug Addiction and/or Alcoholism in various combinations.

E
Easter Seals (disabilities)

Provides services to children and adults with disabilities and other special needs, and support to their families.
Epilepsy Foundation

Wholly dedicated to the welfare of people with epilepsy.

F
Families of Spinal Muscular Atrophy

For the purpose of raising funds to promote research into the causes and cure of the Spinal Muscular Atrophies.
Family Village

A global community of disability-related resources.
Federation of Families for Children's Mental Health

A National parent-run non-profit organization focused on the needs of children and youth with emotional, behavioral or mental disorders and their families.
Foundation Fighting Blindness

To find the causes, treatments, preventions, and cures for retinitis pigmentosa (RP), macular degeneration, Usher syndrome and the entire spectrum of retinal degenerative diseases.

G
Gay Men's Health Crisis (AIDS)

A model for AIDS care, education and advocacy worldwide.
Gilda's ClubWestchester

To provide a place where people with cancer and their families and friends join with others to build social and emotional support as a supplement to medical care.
Glaucoma Research Foundation

Committed to finding a cure.
Guillain-Barre Syndrome Foundation

Providing informative support and increasing the opportunities for patients, family and friends to network and communicate.

H
HandSpeak.com

The exploration of imagery language and visual communication, cultures and arts.
Health Education Resource Organization, Inc. (AIDS)

Offers education, resources, and services for all Marylanders affected by AIDS and HIV disease.
Hepatitis B Foundation

A national non-profit organization dedicated to finding a cure and improving the quality of life of those affected by hepatitis B worldwide.
Human Growth Foundation (growth disorders)

Helps children and adults with disorders related to growth or growth hormone.

I
International Cancer Alliance

A non-profit organization which provides high-quality, focused, user-friendly, cancer information to each patient as well as their physician.
International MS Support Foundation (multiple sclerosis)

To improve the understanding of Multiple Sclerosis through education and workshops.
International Myeloma Foundation

Here to help everyone battling Myeloma.
InternAUT (autism)

A new international Autism self-advocacy organization with its base on the Internet.
Interstitial Cystitis Association

A not-for-profit health organization dedicated to providing educational information and programs, patient support, public awareness and, most importantly, research funding.
Komen Foundation (breast cancer)

To eradicate breast cancer as a life threatening disease.

L
Leukemia Society of America

To cure leukemia, lymphoma, Hodgkin's disease and myeloma, and to improve the quality of life of patients and their families.
Lighthouse International (blindness)

A leading resource worldwide on vision impairment and vision rehabilitation.

M
Mothers' Voices United to End AIDS

Mobilizing parents as educators and advocates for HIV prevention.
Multiple Sclerosis Foundation

To ensure the best quality of life for those coping with MS.

N
National Alliance for Research on Schizophrenia and Depression

Raises and distributes funds for scientific research into the causes, cures, treatments and prevention of the Schizophrenias, Depressions, and Bipolar Disorders.
National Alliance of Methadone Advocates

Composed of methadone maintenance patients and supporters of quality methadone maintenance treatment.
National Association for Continence

A leading source in advocacy about the causes, prevention, diagnosis, treatments, and management alternatives for incontinence.
National Association of People with AIDS

Advocates on behalf of all people living with HIV and AIDS in order to end the pandemic.
National Association of the Deaf

Safeguarding the accessibility and civil rights of deaf and hard of hearing Americans in education, employment, health care, and telecommunications.
National Ataxia Foundation

A nonprofit organization dedicated to encouraging and supporting research into Hereditary Ataxia.
National Breast Cancer Coalition

A grassroots advocacy organization dedicated to ending breast cancer.
National Children's Leukemia Foundation

One of the leading non-profit organizations in the fight against leukemia and cancer for children and adults.
National Coalition for Cancer Survivorship

The only patient-led advocacy organization working on behalf of people with all types of cancer.
National Council on Codependence

To provide education to the general public about codependence.
National Encephalitis Organization

Web site under development.
National Foundation for Hepatitis C

Web page in Dutch.
National Information Center for Children and Youth with Disabilities

The national information and referral center that provides information on disabilities and disability-related issues.
National Kidney Foundation

Seeks to prevent kidney and urinary tract diseases, improve the health and well-being of individuals and families affected by these diseases, and increase the availability of all organs for transplantation.
National Marfan Foundation

Working to disseminate accurate and timely information about this condition to patients, family members and the health care community.
National Multiple Sclerosis Society

Mission is to end the devastating effects of MS.
National Organization for Rare Disorders, Inc.

Dedicated to helping people with rare ""orphan"" diseases and assisting the organizations that serve them.
National Osteoporosis Foundation

Working to promote awareness of osteoporosis and advocate for continued research and prevention programs.
National Ovarian Cancer Coalition

Mission is to raise awareness about ovarian cancer and to promote education about this disease.
National Psoriasis Foundation

Helping to educate people about these complex diseases, including their appearance, symptoms and medical and social effects.
National Spinal Cord Injury Association

Working with local and national officials and agencies to develop better programs and services for disabled people.
National Stroke Association

Our mission is to reduce the incidence and impact of this life-threatening medical condition.
New York State Association for Retarded Citizens

To assist persons with mental retardation and developmental disabilities in every manner possible.
New York State Breast Cancer Support & Education Network

The New York State Breast Cancer Support and Education Network (SEN) is the only statewide network of community-based breast cancer organizations in New York.
North American Chronic Pain Association of Canada

A non-profit organization dedicated to assisting people with chronic pain and their communities.

O
Oncolink at University of Pennsylvania Cancer Center

To help cancer patients, families, health care professionals and the general public get accurate cancer-related information at no charge.

P
Pancreatic Cancer Action Network

Works to focus national attention on the need to find the cure for pancreatic cancer.
People with AIDS Coalition/NY

An archived site maintained by aidsinfonyc.org.
Pulmonary Hypertension Association

To improve the lives of those affected by pulmonary hypertension.

R
Resolve (infertility)

A dynamic organization dedicated to providing education, advocacy and support for men and women facing the crisis of infertility.
RoadBack Foundation (arthritis, scleroderma)

Promotes education about the treatment of rheumatic and some connective tissue diseases.
RSDS Hope Group (Reflex Sympathetic Dystrophy Syndrome)

Dedicated to filling the gap that a lack of information contributes to the hopelessness of RSD Patients.

S
Scleroderma Foundation

The national organization for people with scleroderma and their families and friends.
Self-Help for Women with Breast or Ovarian Cancer

A non-profit organization that provides support services for women, men and children who have been affected by breast or ovarian cancer.
Sidelines (high-risk pregnancies)

Helping women and their families during during a high-risk pregnancy.
Spondylitis Association of America (ankylosing spondylitis and related diseases)

Dedicated to the eradication of ankylosing spondylitis and related diseases.
Sudden Infant Death Syndrome (SIDS) Network

Raising awareness and support for Sudden Infant Death Syndrome.
SusanLoveMD.com (breast cancer)

A nonprofit organization dedicated to the eradication of breast cancer.

T
The CFIDS/M.E. Information Page (chronic fatigue syndrome)

A website by and for people with the illness Chronic Fatigue and Immune Dysfunction Syndrome.
The TMJ Association (temporomandibular joint disease)

Striving for the development of universal standards for safe, effective, affordable, research-based treatments, and prevention of TMJ diseases and disorders.
The Ulman Cancer Fund for Young Adults

Benefitting young adults affected by cancer.
Transplant Recipient International Organization

A non-profit international organization committed to improving the quality of lives touched by the miracle transplantation
Trauma Foundation

Mission is to reduce the number of injuries and deaths due to injuries through prevention, improved trauma care, and improved rehabilitation.

U
Us Too, International, Inc. (prostate cancer)

The world's largest charitable network for men with prostate cancer

W
World Federation of Hemophilia

An international not-for-profit organization dedicated to introducing, improving, and maintaining care for people with hemophilia.